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5026 Community Inclusion of Adults with Autism: A Review of the Intervention Literature [ASHA Session] [Social Work Session]


Thursday, July 8, 2010: 3:15 PM-4:30 PM
Reunion F (Hyatt Regency Dallas)
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Many individuals with autism spectrum disorders (ASD) require support across the lifespan, yet the majority of research has focused on interventions for young children in home and school settings. This presentation will review the findings of a comprehensive review of research on community inclusion of adults with ASD. Intervention studies in the areas of employment, independent living and social inclusion will be discussed. The presentation will identify what remains to be learned regarding supporting adults with ASD in community settings.
Individuals with autism spectrum disorders (ASD) experience challenges in social interaction and communication, which may translate into extremely poor long-term outcomes. Specifically, a significant proportion of adults with ASD have difficulty establishing and maintaining social relationships, have no close friends, are unemployed, are unlikely to live independently and may develop a range of mental health problems such as depression and anxiety (Bauminger, Shulman, & Agam, 2003; Howlin, Goode, Hutton, & Rutter, 2004; Newman et al., 2009; Orsmond, Krauss, & Seltzer, 2004). Many individuals with ASD require support across the lifespan, yet the majority of research has focused on early intervention and supports for younger children in home and school settings. Supporting adults with ASD to engage in competitive employment, live independently and develop meaningful relationships is uniquely challenging. Best practices for supporting the needs of adults with ASD must be identified to ensure that community inclusion can be achieved for all individuals.

This presentation will describe the findings of a review of the research on community inclusion of adults with autism. The goal of the review was to identify the current evidence-based or best practices for supporting adults with ASD in the areas of employment, independent living and social inclusion, and to make recommendations for service providers and for future research. Studies were located through a search of electronic databases (PsycInfo and ERIC) through October 2009. Intervention research targeting outcomes in the areas of employment, independent living and social inclusion of adults with ASD was included. Two steps were taken to analyze the extent to which each area has been addressed through research. First, studies were categorized into the three areas (i.e., employment, independent living and social inclusion). Next, studies were classified as descriptive or experimental/quasi-experimental. Descriptive studies included model program descriptions, predictors of successful outcomes and reports of expert opinion. Experimental/ quasi-experimental studies included both group and single-subject research designs.

The presentation will describe intervention studies in each category. Specific interventions or model programs that have been researched will be discussed to determine what can be considered best practice for supporting community inclusion of adults with ASD. The findings of this review demonstrate how little is known about best practices for supporting adults with ASD. Very few interventions or model programs for these individuals have been researched, which is concerning given the rising prevalence of ASD. This presentation will identify what remains to be learned regarding supporting adults with ASD in community settings and encourage researchers to begin to address these issues. Implications of the study for community service providers of adults with ASD will also be described.


Learning Objectives:

  • Understand the current state of research on community inclusion of adults with autism (outcomes, methodology, critical gaps)
  • Learn what practices in the areas of employment, independent living, and social inclusion of adults with autism are supported by research
  • Identify directions for the future study of best practices for supporting community inclusion of adults with autism
  • Discuss implications of the present review of literature for service provision and programming

Content Area: Long-term Services and Support

Chair:

Linda Bambara, Ed.D.
Professor
Lehigh University

Linda Bambara is Professor of Special Education at Lehigh University, Bethlehem PA.. Her expertise in autism and developmental disabilities spans over 30 years, and includes research in the areas of social and communication, self-determination, and positive behavior interventions for transition age youth and adults.

Presenters:

Erin McCurdy, M.Ed.
Graduate Research Assistant
Lehigh University

Erin McCurdy is a Doctoral Student in School Psychology at Lehigh University. She is interested in examining peer-supported interventions to improve social skills of students with ASD. She is a Graduate Research Assistant on the ASERT (Autism Service, Education, Research, and Training) project.

Anastasia Kokina, M.Ed.
Research Assistant
Lehigh University

Anastasia Kokina is a Doctoral Candidate in Special Education at Lehigh University. She has experience working with students with ASD and has published on the topic of interventions for individuals with ASD. She is a Graduate Research Assistant on the ASERT (Autism Service, Education, Research, and Training) project.