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4685 Transition RX: What You Need to Know

Saturday, July 10, 2010: 1:30 PM-2:45 PM

Reunion C (Hyatt Regency Dallas)

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Maturation is a normal function for all children; however, for individuals with ASD, who struggle with affect disorders, social problems, language deficits and inconsistent self-regulatory behaviors, this stage of change is often hard to understand, much less plan around. It is imperative that the biological and emotional struggles of our children be addressed appropriately with the help of health-care professionals who can support our children as they grow into adults. Personal experiences will be shared.

The often-overlooked importance of health transition planning as children reach physical maturation can lead to failed educational goals, a lack of success in secondary education and exacerbated emotional problems. While there are laws that somewhat protect students in educational settings, there are few if any safeguards in the health-care environment. Families are hard pressed to learn before the fact of consequences to poor health management status. There are guidelines, but no one seems to deem responsibility for coordination of the health, education and employment concerns for students and their families.

· Early or late onset of maturation and the complex behaviors that accompany adolescence frequently disturb the process of understanding how health concerns should be addressed by families who have children with ASD. Sometimes there are disturbing affects of maturation during pubescence, and families are caught unprepared.

· What should students, families and professionals know in order to minimize the difficulties of health transitions? How are they defined individually?

· Who, what, where, when, why and how do we work together for successful transitions?

Actual family experience over a number of years has guided this presentation, and participants will have an opportunity to react to the materials and information. It is important for families and professionals to interact.

Important indicators for transition planning will be discussed:

· What are the laws involved?

· What are the behaviors that most frequently lead to legal problems?

· How important is it for students to reveal their learning problems?

· What is the emotional impact of declaration of disability?

· What does affect have to do with it?

· What are skills, and how are they measured reliably?

· Letting go does not mean the same things for all families

· Risks and risk management for our children with ASD

Learning Objectives:

Gain knowledge on the considerations which strengthen employment opportunities
Post-secondary opportunities/pitfalls for youth and young adults with autism
How to develop transition "indicators" to guide the process
Gain knowledge on health transition components necessary for adolescents/young adults and their families.

Content Area: Life with Autism

Presenter:

Jan Moss, Family Faculty, OUHSC College of Medicine
Director of Leadership and Advocacy & Leadership Education in Neurodevelopmental Disabilities Faculty
Center for Learning and Leadership, University Center for Excellence in Developmental Disabilites

Jan coordinates training and involvement of family members as faculty of health profession courses at OUHSC. She is a frequent presenter locally and nationally. She testified before Congress on the issues of families in caregiver roles. Jan is the parent of two adults, one with ASD.

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