| ASA's 36th National Conference on Autism Spectrum Disorders (July 13-16, 2005) |
ASA Homepage |
| Friday, July 15, 2005: 8:30 AM-10:00 AM | |||
| 205 | |||
| #1097- Effective Advocacy--How to make good things happen | |||
| We must learn to become more effective advocates for our cause. The entire autism community must understand the political climate in Washington DC and in the state house across this nation. This presentation will provide helpful insight into the political process and provide effective tools for increasing your advocacy skills. | |||
| Presenter: | - Jeff Sell and his wife of 18 years, Paula, have been blessed with four children, Natalie (11), Ben and Joe (10), and Gracie (7). Ben and Joe are twins and they are autistic. The family lives in Spring, Texas. Jeff was first elected to serve on the national board of directors of the Autism Society of America (“ASA”) in 1999 and re-elected in 2002. He is presently the 2nd Vice-Chairman of ASA and the Chairman of ASA’s Government Relations Committee. | ||
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1. What is advocacy Definition: \Ad"vo*ca*cy\, n. [OF. advocatie, LL. advocatia. See {Advocate}.] The act of pleading for or supporting; work of advocating; intercession Definition: An “advocate” is a person who attempts to influence the outcome of legislation by contacting legislators at the state capitol (regardless of district boundaries) on behalf of an organization. Effective communication—not a bad thing! Honey versus vinegar 2. Autism Facts 1 in 166 births… Over 1.5 million Americans… Approx 12.5-17 million family members Fastest-growing developmental disability annual growth rateà10 - 17 % Growth comparison during the 1990s ~U.S. population increase: 13% ~Disabilities increase: 28.4% ~Autism increase: 1,354 % US $90 billion annual health care cost ~90% of costs are in adult services Cost of treatment can be reduced by 2/3 with early diagnosis and intervention In 10 years, the annual cost will be $200-400 billion 3. In search of Atticus Finch Use the facts Be Honest Be Sincere Be Clear Be Specific Have a solution The “Ben & Joe” Standard 4.Government 101 Federal State Who and How to contact What to say How to say it E-mail or fax First paragraph of your letter/email, identify yourself and that you are a voting constituent in your legislator's state or district. In the first paragraph, indicate whether you are writing on behalf of yourself, or on behalf of an organization or coalition. In the following paragraphs, provide facts and examples to support your position, including any cost or regulatory impact of the bill/policy you are either supporting or not supporting. If you have specific data or statistics to support your position, cite this information. Data often drives funding. Remember to personalize the issue you are writing about and how the legislation will positively or negatively affect you or those you represent. In the concluding paragraph, thank your legislator for his/her time and interest and ask for a response in a timely fashion. Provide a method for follow-up, such as a phone number or email address. Limit your letter to one (1) page please! 5. To be effective: Serve as a source of reliable, credible and timely information Be able to work with both political parties Be able to work in coalitions Be able to educate community/constituency and keep them informed and updated Focus on 2 or 3 priorities - don't get bogged down Train members on legislative process Publicize issues Use strong arguments for your issue Discuss fairness Take every opportunity to testify at hearings Invite lawmakers to meet and observe what you are advocating for Arouse public concern
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Recorded Presentation
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