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9844 Like Mother, Like Daughter: The Real-Life Lessons of Our Spectrum Duets... (Tiaras Optional)


Saturday, July 15, 2017: 10:15 AM-11:30 AM
Room: 102C (Wisconsin Center )
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Bras. Braces. BA's (and BO). Mother-daughter relationships are complex. Add autism: tough is tougher — triumphs are tiara-worthy. Double that when diagnosis runs in the family. Join author Jennifer O'Toole and daughter, Maura, advocate Brigid Rankowski and mom, artist Gayle Fitzpatrick for lessons from the spectrum-in-pink. Squared.
Every other mother-daughter duo negotiates treacherous waters: puberty and dating, mean girls, screentime, hormones, school, and life plans.

But in more and more families, daughters' diagnoses are leading to their mothers' spectrum identification, too. A decades-later jolt to a reality already well in play.

In families where mother and daughter are on the spectrum - it can be the blind leading the blind. Just as often, though, we instinctively "get" one another in important ways the rest of the world never does. But must. We learn to speak to one another in our own languages -- through special interests, song lyrics, fandoms, stories that are not our own but are adopted into our own dialogue. It is an intense connection that flares brighter and cuts deeper. Like everything about the spectrum, it's life, but with the volume turned up. 

As mothers, we want to save our daughters from the ugliness we've experienced in life. Artist Gayle Fitzpatrick and author Jennifer O'Toole both have fiery, intense girls who veer from joy to dark moments in instants. Both mothers, like so very many, have experienced abuse, loneliness, and all the other confusions that autism will bring -- without role models or guidebooks or understanding or therapy....contending with a world that doesn't see the clinical depression, self-harm, social exclusion, therapists and struggled-through playdates, marital stress and eating disorders behind the front door. All this, while striving to be the solid points upon whom their daughters could rely.

And the daughters -- Brigid Rankowski, mid-20's, and Maura O'Toole, just 14, but very much on the international stage since childhood -- well, they too, deserve to be heard...because sure, listening to someone (even your mother) does not mean that you accept her version of truth. But try telling that to an overly-impulsive daughter struggling with mind-blindness and social anxiety (or to her equally autistic mother).

In this panel -- the first EVER of its kind -- two sets of mothers and daughters will open their hearts and diaries, sharing their very-public joys and equally private entanglements so that families, therapists, counselors, teachers can learn:

  • the communication strategies we've invented that fill in the distance autism injects
  • the necessity of frank, unapologetic talks about sex, dating, marriage and everything in-between
  • how to bear the terrible storms of your own depression and that of someone you love
  • how to use special interests to say everything you can't otherwise
  • how almost everything is figure-out-able....and most of all....

...what we teach each other -- over and over in beautiful, completely typical and entirely atypical ways:

  • "Comparison is the thief of joy. You will come to know more. You will come to be more. And still. Always - always - whenever right now happens to be, you already are enough."
(And yes. There WILL be tiaras. There should ALWAYS be tiaras.)

Learning Objectives:

  • Describe and clarify some of the unique ways autism can present in women and girls; recognize the growing tide of adult women being identified subsequent to their daughters' diagnoses.
  • Discuss methods to empower young women to define themselves through experience rather than comparison. Empower adult women by respecting the difficulty of being "the adult" while managing their own sensory and social challenges, mind-blindness, relationship issues and more.
  • Cite methods to encourage collaboration and communication between generations through increased emotional vocabulary, clear talk about sexuality, friends, school, work, independence, and goals for independence.

Track: Life Stage 3 - Transition

Content Area: Self-Identity and Acceptance

Presenters:

Jennifer O'Toole, BAAS
Asperkids

Jennifer O'Toole is the author of ASA's 2014 Outstanding Literary Work and bestselling Asperkids series. One of Tony Attwood's "Top Aspie Mentors" and winner of the Temple Grandin Award, Jennifer has advised the President's Council on Disabilities and keynotes internationally. She is an Aspie and proud mom of three Asperkids.

Gayle Fitzpatrick, M.Ed., BFA
Gayle Fitzpatrick

Gayle Fitzpatrick has been an artist and educator for 25 years in public schools, private foundations, community programs and colleges. Using research, best practice in education and thinking outside the box, Gayle has developed programs for effective education that respect and honor the student’s mode of learning.

Maura O'Toole
Asperkids LLC

Maura O'Toole is the eldest of author Jennifer O'Toole's, "Asperkids." Entering high school this fall, Maura is so proud to have been the inspiration for her mother's work and is excited to become an advocate for the spectrum girls around the world.

Brigid Rankowski, M.S.
A Road To Me

Brigid Rankowski is a disability advocate and performer located in Maine. In 2015 she received her Master’s Degree from Nova Southeastern University. She works with the Maine Teaching Artist Leadership Initiative, The Autism Society of Maine, Felicity House, and other organizations. In her free time she breathes fire.