The Autism Society Event and Education Recordings Archive



8560 A Home for Max: One Family's Successful Journey to Independent Supported Living


Saturday, July 16, 2016: 8:30 AM-9:45 AM
Studio 8 (New Orleans Marriott)
Empty nest syndrome? It can happen for your family! This session will outline in detail one families struggle with their son who has autism and serious behavioral issues, achieve independent supported living. The dream is possible and you will leave here today with the tools you need to get there.
One of the most frightening decisions parents make is who is to take care of their child with autism.  From babysitters to residential staff, it's always a worry.  The purpose of this presentation is to provide much needed practical information about choices for adult residential services and how to ensure that they are available for your child.  We will begin with identifying the kinds of information that should be collected prior to considering a residential placement.  Then we will outline the needs of your particular child and what documentation is required for your state agency to fully assess his or her level of need.  We will then demonstrate how this information can build a solid case to move your child off the "wait list" and into appropriate housing sooner rather than later.  This is particularily helpful for children with especially challenging behavioral issues that make it an unsafe environment at home for all family members.  We will have "real life scenario" dialog about fears and frustrations of dealing with state agencies, and how to best cut through the red tape, and sometimes intimidation, of agencies that are supposed to be there to support us. 

Lastly, we will outline specific budgeting and hiring strategies for self hire staff, along with how to assess if an agency is the right fit for your needs.  Based on all this combined information, the final step is to choose the perfect home.  We will also demonstrate how person centered residential placement is cost effective for the state and to the families.

Learning Objectives:

  • Parents state necessary skills needed to negotiate with their local state agency to provide person centered, appropriate residential services for their adult child with autism.
  • Parents provided tools to finding the right home and the best staff.
  • Easy to use data collection tools will be described and provided to parents, along with sample budgets outlining cost savings, to help them advocate for their loved one.

Track: Lifespan 4 - Adulthood

Content Area: Residential​

Presenters:

Victoria Z. Meyer, Parent
Parent

I have a 24 year old son with autism. I was the driving froce behind the creation of a full inclusion educational program, a successful social skills group, and an independent supported living home for my son. I have been an advocate for over 20 years both personally and professionally.

Barbara K. Caparulo, Psy.D.
Clinical Consultant

: Clinical psychologist with background in neurobiological research of autism and related conditions; behavioral/ developmental assessment; administration of educational, residential and whole life clinical services. Provides consultation and training to individuals, families, organizations and government agencies in creating person-centered systems of care/support for people with dual mental health/special developmental supports.