The Autism Society Event and Education Recordings Archive

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Autism Society records most keynote and concurrent sessions at their annual conferences. You can see and hear those recordings by purchasing full online access, or individual recordings.



5127 Siblings Speak Out


Friday, July 9, 2010: 2:30 PM-3:45 PM
Landmark B (Hyatt Regency Dallas)
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This session offers the opportunity to sit down with four siblings, ages 12-18, with diagnoses that include autism, Asperger Syndrome and ADHD. They will discuss topics such as family relationships, sibling inclusive therapy, bullying and teasing at school, community involvement and outlooks for their individual and collective futures. Each sibling brings a unique perspective of ASD and how it affects their lives. Suggestions for family balance as well as a question-and- answer time will be included.
Siblings are often the “forgotten” family member when it comes to having a child with an autism spectrum disorder. Therapy and home adaptations can take over a family’s life. In this unique session, four siblings, one with Asperger Syndrome, one with autism and two ‘’neurotypical’’ siblings discuss openly and, sometimes with blunt honesty, the challenges, struggles and also fun they share.

Each sibling brings a very individual perspective. Cameron has just graduated from high school and is looking forward to college and new experiences. His Asperger Syndrome was diagnosed when he was in 2nd grade and has much affected his relationships with his siblings. His early years were spent forming very few relationships with others- including his siblings They will each discuss how when they joined the school band- Cam’s special interest is music and musical instruments- they finally had an area of shared interest and a doorway to a relationship. Those relationships that started out so narrowly based have grown over the years.

Jordan’s autism diagnosis brought different struggles as he was much delayed in his developmental stages and came to rely on his older brother Craig to learn many social and physical skills. His early life was filled with First Steps therapists in the home 5 days a week. Those talented therapists did a wonderful job of utilizing his siblings in their therapy sessions, to not only foster social interaction but also to give a feeling of inclusion for his siblings. For example, occupational therapy was known as “Cooking With Faith” to the kids and that inclusiveness has continued to be a favorite time shared between the siblings.

Jamie brings with her the challenges of not only being the only girl, but also having ADHD. This was not always easy for her as Jordan was placed in her class for advanced math work in elementary school. As interventions were adapted to better suit her, she came into her own through self-advocacy. She speaks passionately about bullying and takes it on with an honesty that has earned her respect as she speaks at autism awareness programs at her school and at workshops and conferences where her family presents. She will share the power of actions and words not only for those on the spectrum, but for their family members and others as well.

Craig carries a different responsibility as the ‘big brother’ of an adoring younger brother with autism as well as the younger brother to a sibling with Asperger's. He has carried a large load, and shares his successes and frustrations in a passionate and often humorous way. Craig has found ways to include Jordan in appropriate activities and has shared his interest in golf, fishing, video games and cooking. His musical talent has led him to join his older brother in the local youth symphony.  

Participants in this session will see the work it takes as siblings to deal with ASD in the family, but that by working together, the quality of sibling relationships can be remarkable. These four young people are dedicated to helping others along the path to understand that family relationships are possible and can even thrive within a family that includes autism spectrum disorders.


Learning Objectives:

  • Participants will gain insight into challenges siblings face when a family member has an autism spectrum disorder.
  • Participants will learn creative ways to include family members in theraputic interventions.
  • Participants will gain insight into the relationships of siblings when autism spectrum disorders are present.

Content Area: Life with Autism

Presenters:

Jordan Blackwell
Person on the Spectrum
AutismNotes.com

Jordan is a 7th-grader who was diagnosed with autism at 15 months. He loves fishing, video games and golf. Jordan has shared his story through speaking as well as publishing his perspective entitled "My Voice: My Life with Autism" in the AAPC newsletter.

Cameron Blackwell
Person on the Spectrum
AutismNotes.com

Cameron was diagnosed with Asperger Syndrome at age 8 . He graduated from high school with an honors diploma, is an Eagle Scout and plans on majoring in psychology at the University of Louisville. He began speaking about AS by age 10 and has presented with his family at the Autism Society and other conferences.

Darren Craig Blackwell
Family Member
AutismNotes.com

Craig is entering 10th grade and is very involved in high school band as well as the local youth symphony. He is working towards becoming an Eagle Scout. He enjoys speaking about special education concerning life with two brothers with ASD.

Jamie Blackwell
Family Member
AutismNotes.com

Jamie, 14, is in 9th grade and plays the tuba . She enjoys presenting about topics in special education, especially about her two brothers with ASD. She has helped with schoolwide autism awareness programs. She loves to draw and enjoys spending time with her friends, family and pets.