The Autism Society Event and Education Recordings Archive

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Autism Society records most keynote and concurrent sessions at their annual conferences. You can see and hear those recordings by purchasing full online access, or individual recordings.

3297 Speaking for Ourselves: Individuals with ASD Talk About Their Lives


Thursday, July 10, 2008: 12:30 PM-1:45 PM
Sun Ballroom A (Gaylord Palms Resort & Convention Center)
MP3 Handout

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The people who can teach us the most about autism are those on the spectrum. This annual panel allows individuals with ASD to share their perspectives and teach us lessons they have learned. This would be the 18th annual Speaking for Ourselves panel at the national conference of the Autism Society of America.  This panel provides an opportunity to hear first person accounts from four individuals on autism spectrum.  A different group of panelists is chosen each year in order to give a variety of individuals an opportunity to share their varied life experiences.   Panelists are chosen to reflect the diversity of the spectrum of individuals with autism.  If possible, a mixture of gender, race, experience and functioning levels is preferred.  Preference is given to having panelists from the area that the conference occurs in order to represent that area. The families and communities that the panelists represent often come out to cheer these individuals on and it is a wonderful opportunity for the panelist to share his or her thanks for their support.          
The panelists will tell about the difficulties that they encountered in their early life, their struggles with the educational and medical systems, the support of their families, the discouragements that held them back, and the successes that kept them going.  The panelists will speak about their difficulties with social situations, their sensory differences, what they enjoy in life, their friendships in and beyond the autism circle, what they have learned about advocating for themselves and/or the employment they have had or hope to get.  Panelist often tell about the misconceptions others have about autism  Their ability to verbalize their insights may provide a benefit to parents, professionals and individuals with autism.
In addition, this panel is an opportunity for the audience to validate and encourage these individuals.  So often in life, they have experienced failure or been excluded because of their differences.  During this session, we can tell them with our attention and applause, that we are proud of their efforts and progress.  These individuals walk off the stage with a renewed faith in life, because they have been listened to and valued.
Panelists have ranged in age from 12 to in their 50’s.  Qualifications include a diagnosis of autism, PDD or Aspergers; ability to communicate from the stage to an audience, and the desire of the individual with autism to participate and share their story.  
The Autism Spectrum Individuals panel has been a heartwarming, humorous and informative event for those who attend it each year at the national ASA conference.  It has also become a cornerstone activity for individuals with autism who attend the conference to meet with others who have shared these challenges.  During the session, individuals on the autism spectrum who wish to will be given the change to introduce themselves to the audience.  Many people with ASD have meet through this panel.    
The moderator of this panel is known nationally for organizing and moderating panels of individuals with autism and works extremely hard to put together a panel that represents the diversity  of autism.  She has organized a panel for every ASA national conference for the last 18 years and has developed a following of parents, professionals and individuals with autism who attend to meet the new panelists and hear their insights.

Learning Objectives:

  • The audience will learn about the life experiences of four individuals on the autism spectrum.
  • The audience will gain insights from the perspective of individuals on the spectrum.
  • The audience will learn strategies that were helpful for some individuals on the spectrum.

Content Area: Personal Perspectives

Presenter:

Julie A. Donnelly, Ph.D.
Autism Consultant
Project ACCESS

Julie Donnelly has a Ph.D. in Special Education and over 30 years of teaching and autism consulting experience. Julie teaches university classes and works for Project ACCESS, the Missouri educational autism agency. Dr. Donnelly speaks and publishes nationally and internationally. She is the mother of Jean-Paul Bovee, who experiences autism.