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The ASA's 39th National Conference on Autism Spectrum Disorders of ASAThe Westin Kierland Resort & Spa, Scottsdale, AZ |
For a complete author index with session numbers, please click here |
Saturday, July 12, 2008: 10:45 AM-12:00 PM | |||
Tallahassee 3 | |||
#3416- Ten Things You Need to Know When Your Child Turns 18 | |||
This presentation will prepare you and your child for transition to adulthood and is presented from the perspective of a family who are currently going through these processes. Top ten items include Supplemental Security Income, Estate Planning, Life Insurance, Job Assistance, Recreation, Education, Residency, Medical, Housing, Guardianship. | |||
Presenters: | - Tracy Parent is the mother of three children, including her 21-year-old son Bryan who is an individual with autism. Ms. Parent, along with her Least Restrictive Environment team, serves 45 county schools through the Designing Quality Inclusive Education Program. She is the countywide program coordinator for disability awareness. - Winner of the ASA 2007 Individual with Autism Award, Bryan is a wrestler, individual with autism, and student in the PACE program at National Louis University near Chicago. "Crusher" wrestled for Oakland Mills High School in Columbia MD--he finished fourth in the County and was an alternate for State. | - Jaime Parent is a former ASA Board Member and Committee Chairperson. Blessed with three wonderful children, he and his wife Tracy, a Special Education Coordinator in Howard County, Maryland, serve as advocates and supporters for those with autism and other disabilities throughout Howard County.
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This presentation describes the top then things you need to know or at the very least be planning for, when your family member with autism turns 18 years of age. Few of these items are standalone events; together, they comprise a complete quality of life plan to maximize the full potential of your child as well as giving you both the opportunity to continue to support, nurture, and be prepared for the life challenges ahead for you and your family As all of these points are important, they are presented alphabetically here and will be elaborated upon in greater detail during the presentation. Education. Learning is a lifetime process that should continue for your child…as well as yourself. As learning does not end after high school, parents should have plans in place for further education. Such endeavors need not be limited to Harvard or even local community colleges. Technical training is available and should be pursued. Even the lowest functioning child can still learn and grow upon departure from the public school system. Estate planning. As your child transitions to adulthood, wills become more important for you, your spouse, your son or daughter with autism, and your other children and heirs. Having a well constructed will won't cost you a fortune to obtain, but may cost you a fortune if you do not have one, or you have one that benefits a child with autism, yet hurts them at the same time. Trusts and estate planning should also be considered. One important aspect of a will and proper estate planning would be one that provides your adult child access to assets, while at the same time, protects SSI and Medicaid eligibility. Such vehicles can be constructed in a way that both benefit and protection can be provided. Life Insurance is a very important component of a complete financial plan. The trick is to provide for the disabled family member, yet also insure the financial viability and future of other children, should the loss of one or both parents occur. There can be some severe ramifications if not properly, or perhaps worse if not done at all. Family and Letter of Intent. Your family is your greatest asset or your worst nightmare. As your other children grow older, they, too have needs. Include them in your decisions and make sure they are aware of what is happening Guardianship. A difficult decision. What is a guardian and how do you obtain one? What are the factors that may affect your decision for guardianship? This decision needs to be addressed and weighed carefully for its legal, social and financial implications for both the individual and the family. A clear concise lifetime plan is essential for this decision to be made. Housing. There are many options to consider and plan for here. Options include purchase of real estate, selection of group home, or staying with family. Financials resources obviously play a significant role here, but there are state agencies that can assist with this decision which will have a great impact on the quality of life for you and the family. Jobs. We need jobs both for income generating purposes and self-worth. Your transitioning family member with autism is no different. Few things in life contribute more to the feeling of selfworth and contribution to the world than a good job. Employment for individuals with autism, regardless of where they might be in the spectrum, requires specific planning and there are particular strategies you can use both on your own and with state resources to accomplish job goals for your adult child. |
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