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Purchase AccessI have extensive experience in this area. I am totally Deaf and my husband is also Deaf. We understand the truths behind communication from the time we were little. We struggled to communicate with our families and with the community around us. Yet we were able to overcome these struggles through the use of our American Sign Language our preferred mode of communication. We also had additional struggles brought into our life when our second son Lance was born blind. I have learned so much from Lance and between my husband and I, we have devised alternative modes of communicating with our son. Despite our deafness and his blindness, we refused to let something like this get in our way. Then we discovered that Lance is also autistic. His needs demanded that we give him all that we had and establish a creative way of communicating with him. There wouldn't be anything in the world that we wouldn't do for Lance. Our doctors told us that the reason he couldn't communicate was because he had Deaf parents. Yet we knew from the time that he was 9 years old that something was wrong even more so than the blindness. We suspected that he had something along the autism spectrum, but our doctors refused to confirm this diagnosis. They blamed us Lance's parents because of our communication style. Ironically, we were about the only ones that Lance could communicate with. His father had taught him tactile signing (signing in his hand) and they could have in-depth conversations. Finally after many doctors and years of searching, we saw a presentation at ASA by Dr. Tsai. I took Lance to see Dr. Tsai and he finally confirmed our suspicions and diagnosed Lance as having some form of autism.
It is important that parents have the opportunity to attend these workshops and meet the experts in the field. Without the knowledge that I gained from the ASA, I might still be searching for answers for Lance. Yet this diagnosis made all the difference in the world. Lance is now enrolled in an autistic program at school instead of a VI program and he is succeeding in ways that we never could have imagined.
Most people asked us how we communicate with Lance. It has taken us a long time to teach Lance, yet we have succeeded in establishing communication with him. I know the experience I have gained can help other parents who have children that are dually diagnosed. While it may take a while to teach proper communication, we have succeeded and others can too. We felt so emotional and helpless and didn't know how we could make our son a success story. Yet we have. And so has he. He is enrolled in school and attends 5 general classrooms and he is popular at school. He is even in the orchestra. . So here is the question? What are the most important issues for children who are autistic and who are blind or deaf? What communication mode is needed? What kind of sign language is the best choice for an individual who is autistic and Deaf? How can an autistic and blind individual learn to Braille? How can parents communicate? How do the other members of family cope with this child and how do they need to be involved with the autism? How do you reduce the embarrassment of having a family member who is autistic and blind or Deaf? Do other siblings withdraw or rise to the occasion for their brother or sister? I will also share with you the issues that my older son Stefan faces in having to live with and help care for his blind and autistic brother. And finally I will discuss education options for the child. What is the best placement a VI Program or an Autistic program?
Learning Objectives:
Content Area: Communication
Judy C. Vardon, Parent
Community Volunteer
Deaf Community Advocacy Network