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7159 ASD Is a Family Affair: Improved Family Quality of Life through Positive Supports and Person-Centered-Planning [CRC Session]


Friday, July 25, 2014: 10:45 AM-12:00 PM
204 (Indiana Convention Center)
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“The Focus Family Support for Autism Spectrum Disorders” is a comprehensive tertiary level support model combining family-centered-planning and positive behavior supports, designed after the successful model developed by the West Virginia Autism Training Center. Families that participate in this process are realizing improved quality of life for their family. This presentation will begin with an overview of this comprehensive tertiary level service delivery model of intervention for individuals with autism spectrum disorders. The process developed at the West Virginia Autism Training Center was funded in part, by a grant from the Centers for Disease Control and named “The Family Focus Positive Support (FFPBS) Process .”  The critical components of the process are 1) family and person-centered planning, 2)support teams comprised of  family, school personnel/employers and others involved in the focus family’s life, 3) training for support teams through educational workshops related to best practices in autism intervention, and 4) the development and implementation of a comprehensive and  individual support plan for each focus family. An additional component is the inclusion of a community partner who is a parent of a child on the autism spectrum and who lends a variety of parent to parent support. The presenter will describe each step in the process and present strategies that assist the implementers in maintaining momentum and documenting progress.

     The Illinois Autism Training and Technical Assistance Project (IATTAP) participated in workshop training with the West Virginia Autism Training Center in 2004.  The process was then successfully replicated with some modification in Illinois beginning in 2005. IATTAP has worked with over 290 teams and will provide outcome data for a group of 75 focus students collected using an on-line system of 8 tools developed specifically for this process and used both dynamically during the intervention to guide data-based decision-making and post-intervention to provide information and analysis regarding student and family outcomes.  Outcome data will include Student Placement Risk, Academic and Behavioral Classroom Functioning, Family Stressors and Quality of Life.  Presentation will also include outcome description and data for a case study family.

Learning Objectives:

  • Participants will be able to manage the critical components of this intensive level support model for families
  • Participants will be able to restate some of the outcomes families are realizing after participating in FFSASD
  • Participants will recognize how this positive behavior support approach is implemented and can be replicated by other agencies and states

Content Area: Family and Sibling Support

Presenter:

Kathy L. Gould, M.S.
Program Manager
Illinois Autism Partnership at Easter Seals Metropolitan Chicago

Kathy Gould is Program Manager of Illinois Autism Partnership at Easter Seals Metropolitan Chicago. She was formerly Director of Illinois Autism Training and Technical Assistance Project, Executive Director of Learning Disabilities Association of Hawaii, Director of Hawaii’s Parent Training Center and helped create Hawaii’s first Autism Training Project.